Role Summary
We are seeking to appoint an enthusiastic Band 6 Registered Nurse to audit and enrich rare kidney disease data at Kidney Centres in the South West. Collaborating with these assigned participating Centres, the nurse will improve the quality and completeness of the data held in the Registry of Rare Kidney Diseases (RaDaR), and where possible recruit patients with C3G and IC-MPGN identified in hospital records to this registry.
About the Role
For more information on the Job Description and Responsibilities please click the link below.
More detail about the role:
This post is funded by the UK Kidney Association (UKKA) and is a National initiative with posts in Manchester, Newcastle, London, Birmingham and here in Exeter. The post holder will be based here in Exeter but be expected to travel to Plymouth and Truro to work with the renal clinical teams there.
The UKKA is the leading professional body for the UK renal community, improving lives by supporting professionals in the delivery of kidney care and research. They welcome members working in clinical renal care, treating and caring for people with kidney disease, and those working in research, or related sciences and fields. The UK Renal Registry is the part of the UKKA responsible for the collection, analysis, management and development of a high quality clinical renal database. They use data submitted from the 71 adult and 13 paediatric renal centres across the country to create the database. The information, in the form of data and reports, is a shared resource used to develop research into kidney disease to improve the quality of care for renal patients.
Main duties
1. Work with key stakeholders, both internal UKKA colleagues and across the participating Kidney Centres (or the relevant assigned Centre), to build an early understanding of the relevant rare disease datasets held in the RaDaR registry and the C3G and IC-MPGN study.
2. Establish effective working relationships with key stakeholders in each assigned Centre, liaising with key contacts to develop an agreed plan for relevant medical records (patients notes and electronic information) and biopsy reports to be accessed.
3. Work with the RaDaR senior data manager to conduct audits of the data, for relevant rare disease groups in each assigned Centre, to establish data gaps and inaccuracies.
4. Conduct on-site visits at relevant Centres, liaising with key contacts to identify priority data items on which to focus enrichment activities.
5. Liaise with UK Renal Registry contacts, particularly the RaDaR senior data manager, to access data completeness reports and updates, and guidance on where to find the data items.
6. Consult this report together with local records (patient notes and other data sources, which will vary depending on the Centre); cross-reference against data held in the RaDaR registry.
7. Where there are inaccuracies or gaps in completeness, manually add, transcribe and enrich the data.
8. Conduct subsequent audits in conjunction with the RaDaR senior data manager to establish and ensure improvements in data quality.
9. Provide regular reports and updates to the senior project manager, Rare Disease Groups and to RaDaR Chairs.
About you
We are looking for someone with a flexible and highly motivated attitude who is able to use their initiative and be innovative. You need to have an interest and understanding of data and renal terminology. You must have proven IT skills and be competent in data management. This role requires the ability to work autonomously, prioritise a workload and deliver to deadlines.
We have a comprehensive induction package for all new starters joining Research & Development and are committed to supporting your professional development. We are proactive in the care and wellbeing of our staff with use of Buddy’s and regular staff mixer mornings and events.
Working Pattern: 37.5 hours per week, Monday to Friday, some UK travel may be required together with overnight stays.
Interview Date: Monday 2nd September 2024
For further information about this post please contact: Dr Coralie Bingham, Consultant, on coralie.bingham@nhs.net
This is a fixed term contract for 12 months. For current NHS employees this post could be a secondment opportunity.
As an inclusive employer, the Royal Devon values diversity and is committed to creating a culture of inclusivity where everyone can be themselves and reach their full potential. We believe in fostering a sense of belonging and actively encourage applications from individuals of all backgrounds, cultures, and abilities. We recognise the advantages of having a diverse workforce that reflects the communities we serve.
Preference will be given to staff with ‘Priority’ and 'At Risk' status including NHS At Risk staff throughout Devon.
The Royal Devon University Healthcare NHS Foundation Trust reserves the right to close vacancy when sufficient applications have been received.
The Royal Devon University Healthcare NHS Foundation Trust was established in April 2022, bringing together the expertise of both the Royal Devon and Exeter NHS Foundation Trust and Northern Devon Healthcare NHS Trust.
About Us
Stretching across Northern, Eastern and Mid Devon, we have a workforce of over 15,000 staff, making us the largest employer in Devon. Our core services, which we provide to more than 615,000 people, cover more than 2,000 square miles across Devon, while some of our specialist services cover the whole of the peninsula, extending our reach as far as Cornwall and the Isles of Scilly.
We deliver a wide range of emergency, specialist and general medical services through North Devon District Hospital and the Royal Devon and Exeter Hospital (Wonford). Alongside our two acute hospitals, we provide integrated health and social care services across a variety of settings, including community inpatient hospitals, outpatient clinics, and within people’s own homes. We also offer primary care services, a range of specialist community services, and Sexual Assault Referral Centres (SARC).
Our state-of-the-art equipment, leading technologies and strong links to local universities put us at the forefront of research and innovations, enabling us to provide world-class care to our local communities.
Our values are at the heart of everything we do, click here to find out more
It has never been a more exciting time to join the Royal Devon, as you will help to shape our services as we continue along our integration journey.
Benefits
Looking after you is important to us.
We strive to help our staff create a healthy work-life balance through flexible working schemes and our family friendly policies.
If you are starting out in the NHS, you’ll start with 27 days paid annual leave (plus bank holidays), rising to 33 days plus bank holidays.
You will benefit from access to our own comprehensive occupational health services, including counselling, onsite wellbeing activities and groups.
We will work together to maintain a culture that develops and supports you and your team.
This might include funding for a care certificate, a degree or leadership qualifications. Or it might include days off to study, engage in CPD or rotational placements to help you hone your skills. Wherever you are heading in the NHS, we will help you get there.
Salary is not the only financial benefit
You will have access to an extensive range of staff discounts on shopping, fitness and leisure options and you can spread the cost of technology and home appliance purchases from major retailers. You will also have access to other benefits including:
- National discount services such as the Blue Light Card and Health Service Discounts.
- Salary sacrifice options including our OFSTED rated outstanding nursery onsite at Exeter
- Car lease schemes.
- The NHS Pension scheme (one of the most generous and comprehensive in the UK).
- Cycle to work scheme
These are just a few of the benefits available – if the role is something you are interested in, we would love to hear from you.
